Due to the relatively low incidence of acromegaly, patients often express feelings of anger and frustration and may feel isolated, especially because of the delay in diagnosis.
Many people benefit from participating in a support group. Being an active member of a support group gives individuals with acromegaly, or any chronic illness, an opportunity to move towards a healthier emotional state. It can also lead to them taking control of their lives.
Attendance of patients and families in these support groups can lead to improved communication and may help families to cope. It is an opportunity for family members and patients to ask questions in a non-clinical setting. When feelings are expressed in a supportive environment, you can gain energy, find humour and a sense of peace.
Ask your clinic nurses if a support group exists in your area.
Check out the true-2-me guest editorial on treatment Considerations for Acromegaly